Can an epileptic live alone
This specialist became aware of “how poorly we physicians transmit information, especially when we give parents the diagnosis. At that moment, they are in shock and do not process the information. We give them a sheet of paper, sometimes with poorly legible handwriting, to take home. And that’s when they really start asking questions. That’s why I think this application can be of great help to them,” says this specialist.
Because she, better than anyone, knows how frightening a seizure can be: “My father and my brother had a hard time. In my case, I had convulsions in which I could bite my tongue, I lost sphincter control, my body became rigid”, but this can vary from person to person. In cases like hers, Sara recalls that the best thing to do is to put the person on his or her side, so that air can get in, not to hold him or her down, not to put anything in his or her mouth, to put something soft under his or her head so that it doesn’t hit and to wait for the seizure to pass. “If the crisis lasts more than five minutes, call 112, but if it is less than five minutes, do not do anything.
Living with epilepsy
First aid for generalized tonic-clonic seizures (grand mal)When thinking of a seizure, most people picture a generalized tonic-clonic seizure, also called major epilepsy or grand mal. In this type of seizure, the person may scream, fall down, shake or spasm and not be aware of what is going on around them.
Download the free Red Cross app on your mobile device for instant access to step-by-step first aid tips, including seizure and epilepsy advice.
How to cure epilepsy for good
Caring for someone with uncontrolled epilepsy can be like living in a state of constant danger. There will be another seizure, but no one knows when. Even for those who have witnessed hundreds of seizures and know exactly what to do, seizures create stress. Someone they love is in trouble. Something different may happen this time. The seizure may continue for a long time. Their loved one could stop breathing. They just don’t know it.
Stress is a normal part of everyday life, with stress response systems alerting people to danger or motivating action. But the stress associated with caring for someone who has uncontrolled seizures meets all the requirements for traumatic stress: it is severe, recurrent, chronic and unpredictable.
What an epileptic should not do
People with epilepsy have seizures (convulsions) repeatedly. The cause of seizures is unusual electrical activity in the brain, which can change a person’s behavior, movement or feelings.
Doctors usually treat seizures with medication. If medications do not control seizures, doctors sometimes recommend a special diet, such as a ketogenic diet. A ketogenic diet is a strict high-fat, low-carbohydrate diet that sometimes reduces seizures.
If your child has epilepsy, reassure him or her that he or she is not alone. Your child’s doctor and medical team can answer questions and provide support. They can also recommend a support group in your area. Online organizations, such as the following, can also help: